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Hypertrophic Cardiomyopathy Association (HCMA) www.4hcm.org
Syncope Trust and Reflex anoxic Seizures (STARS) - www.stars.org.uk
Sudden Adult Death Syndrome (SADS UK) - www.sadsuk.org
Cardiomyopathy Association (CMA) - www.cardiomyopathy.org
International Assoc Patients Organisation (IAPO) - www.patientsorganizations.org
St George’s Hosp ICD Patient Support Group -
Marfan Association UK - www.marfan.org.uk
Resuscitation Council UK - www.resus.org.uk
Age Concern - www.ageconcern.org.uk
British Congenital Cardiac Association (BCCA)
The Patient’s Association - www.patients-association.co.uk
ICD Patient & Family Heart Support Group UK - www.beehive.thisisstaffordshire.co.uk
Long-term Medical Condition Alliance (LMCA) - www.lmca.org.uk
Genetic Interest Group (GIG) - www.gig.org.uk
Scottish Heart - www.dundee.ac.uk/sharp
Children's HeartLink - www.childrensheartlink.org
Inappropriate Sinus Tachycardia (IST): Information & Support - www.geocities.com/inappropriatesinustachy
Grown Up Congenital Heart Patients Association (GUCH) - www.guch.org.uk
GUCH stands for Grown-Up Congenital Heart disease. We are a national charity to support patients born with complex heart conditions who have survived into adulthood. Thirty years ago only 15% would have become adults. Thanks to medical advances 80-85% now survive. The increase in the GUCH population will continue but the medical expertise has not kept up with their needs and it has not matched the care they received as infants and children.
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